Why I kept my baby after finding out he had Down syndrome

Last week strident atheist Richard Dawkins wrote that mothers who find they are expecting a child with Downs’ syndrome have a moral responsibility to abort the baby. Elizabeth Schilz disagrees:

Why I kept my baby after finding out he had Down syndrome

My Oma was born in a little village near the town of Hadamar. Hadamar sits in the shadow of a tall hill called Mönchberg – Monk’s Mountain. On top of that hill stands an old Franciscan monastery, which was converted into a state hospital and nursing home in 1803. In 1940, however, that hospital was turned into one of the infamous Nazi ‘killing centres’. These were the six institutions spread all over Germany where first children, and later also adults, with disabilities such as (in the language of those times) ‘idiocy and mongolism (especially when associated with blindness and deafness), microcephaly, hydrocephaly, malformations of all kinds, especially of limbs, head, and spinal column, and paralysis, including spastic conditions’ were taken, systematically starved to death or gassed, and cremated.

elizabethschiltz

Oma rarely spoke to us about her experiences during the war. But we know that she was affected by the experience of living in the shadow of Mönchberg. I was the fifth of sixth children. Oma loved us all very dearly, but she had a favorite, and she never made even the feeblest attempt to hide it. The other five of us were all her Silberfische – silverfishes. My older brother, Jim, was her Goldfisch – her goldfish.

Jim was born ‘mentally retarded’. When he was born back in 1952, the medical professionals counselled my parents to send him to live in an institution. My parents refused, and with much work and love, they taught Jim to do all those things that the medical professionals told my parents he would never do, like talk and walk. Jim graduated from high school. He is bilingual – fluent in German as well as English. He reads the newspaper everyday. Jim has held the same full-time position in the kitchen of a country club for twenty years now, and does not receive any sort of public assistance. Jim is known around our family as ‘the human jukebox’, for his uncanny ability to remember the lyrics to any song, from any era, by any artist.

In some sense, although we did not live in the town of Hadamar, I think that all the kids in my family grew up in the shadow of Mönchberg as well.

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